Sunday, September 23, 2007

'Another One Gone', Moe. Vid Contest

Duration: 04:37 minutes
Upload Time: 07-04-14 23:12:13
User: gcbspender
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Description:

Video for Moe's video contest. When I first thought about what to create for this contest, I really didn't know what direction to go in. So it came down to 'Shoot what you know' and the only thing I have known for the past few months has been my living room, as I have been recovering from a newly diagnosed disease called Sarcoidosis. This disease has caused me many problems and for the most part has made me a prisoner of my own apartment, espiecially during the months I couldn't really walk. So, this is my video. A time lapse of myself doing what I do while recovering; which is resting, doing my rehab exercises, taking an obscene amount of medicine, and wasting time on the net- all while the world goes by.

Comments

gcbspender ::: Favorites
Can't wait to see your work! So sorry you've sustained so much damage from this.
07-09-14 18:44:39
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gcbspender ::: Favorites
yeah, you sound like me. I just started a new job and I am having trouble making it through the day without horrilbe headaches and being tired. I am also battling my 2nd cold in 2 weeks. Having a suppressed immune system isn't fun. I believe the nodes in my lungs have shrunk but I do have permenant damage to my right eye. Hang in there and feel better.
07-09-14 18:42:42
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varminblast ::: Favorites
HI..... I too have sarcoids disease. Swollen lymph nodes on my lungs, chest pain and an irritated right eye. Its a little debilitating for me. I can usualy work about 4 to 5 hours a day before getting tired. I never thought I would live a life of just getting by day to day but I sure feel a bit better than a year ago....
07-09-11 19:33:36
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newblackmusic ::: Favorites
Hey everyone. great video here. i will be doing my own video soon as well. I have been disabled for 16 years because of this disease. After being on very high doses of Prednisone and pain killers for many years i turned to herbs and other alternatives. i now test sarcoid negative but severe damaga was done to my spinal chord from the disease. My advice to everyone is not to depend on the medical establishment. do your own researcha and take control of your health. Peace!
07-09-11 06:26:54
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latenitelee ::: Favorites
God speed man...I to have this terrible disease, it damn near killed me a few years ago, but now i live day to day.
07-09-02 23:17:08
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gcbspender ::: Favorites
Doing better, for me it affected the nerves in my head, eyes, ears, lungs a little bit, and vestibular system which affected my ability to walk. Right now it is mostly the drug based side-effects that are messing with me but my prednisone is tapered down to a point that they seem to be going away. Let's just hope the Methotrexate can do it's job.
07-07-17 23:24:58
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twinkart ::: Favorites
Yes thanks, I'm doing pretty well. It mostly bothers my joints and makes my ankles swell...it did a number on my heart some time ago, but that has been remedied. It doesn't have any pattern or predictibility, it affects everyone in different ways. It doesn't seem to be in my lungs, but appears in x-rays as a possible lung involvement - when in reality it is the swollen lymph glands behind the lungs. How are you doing now?
07-07-17 23:01:38
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gcbspender ::: Favorites
Thank you for passing on some of your wisdom. I greatly appreciate any advice. Hope you are doing well.
07-07-16 14:08:05
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twinkart ::: Favorites
I was first diagnosed in '82, prednisone (HORRIFIC weight gain), relapse in 90's (refused treatment), now back again. Scarring on heart caused syncopy, now I have a pacemaker. Feel OK 'cept for joint pain...but its a sneaky disease and you can't know what's going on inside. Hang in there. Read as much as you can and be ready to defend your decisions. Most of 'us' live with it with inconvenient side effects, worst case scenerios are rare.
07-07-15 11:21:31
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gcbspender ::: Favorites
Hi, I am right there with you and hope, you too, are on the road to recovery. Sometimes it doesn't even seem like the Doctors know what they are doing with this disease, as it is that rare. I can only assume and hope you have better health care over there in the UK. Thanks for the comments and well wishes and you most defintely are not alone.
07-06-24 01:29:47
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